Acknowledging HIV Olders

wíkv 'eagle', Koeye Lodge, Híɫzaqv Territory. Photo courtesy of Valerie Nicholson

“HIV Olders” is a name that was created by Older Valerie Nicholson and developed as part of the Weaving our Wisdoms study.

We ask that the use of this name, HIV Olders, be in alignment with traditional Indigenous ways of acknowledging the origins of constructs and ideas. This is rooted in cultural teachings that uphold the importance of acknowledging those who have come before and the wisdom that they gained over their life experience that brought them to this place.

Like the eagle, an HIV Older can fly above the storm and has an eagle eye perspective over the land; they see the tiny details but also the big picture (Mellor et al., 2018, p. 70)

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WoW Research Principles

The WoW study’s research principles align with the Canadian Aboriginal AIDS Network’s (CAAN) Principles of Ethical Research with Aboriginal Peoples and Communities. Some of the principles include, but are not limited to, the following:

• Acknowledging and respecting the Aboriginal right to self-determination,including the jurisdiction to decide about research in their communities.
• Ensuring meaningful and equal participation from Aboriginal community members.
• Obtaining meaningful support from community members.
• Collectively making decisions on research questions and all phases of data collection, analysis, and dissemination.
• Research be relevant and beneficial to Aboriginal communities.
• The way research is communicated back to community must be relevant and in a timely manner.
• The team will focus on strengths and not sensationalize problems in Aboriginal communities.
• The entire research team will reach consensus when publishing and presenting research materials.
• Research engagement and capacity-building for participants and researchers will be meaningful, appropriate, and reciprocal.
• ​The team agrees that Aboriginal communities have the right to follow cultural codes of conduct and community protocols.
• The team agrees there may be times where advice and support from community Elders and leadership is necessary.

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For more information on ethical considerations of engaging with Indigenous communities and the role of Health Research Ethics Boards in community-based research collaborations, please see this video by WoW Principal Investigator, Sherri Pooyak:

Gathering Knowledge: Working with Indigenous Communities
https://vimeo.com/301304413

WoW Research Methodology ​

The WoW Study is guided by four main approaches to research:

Community-based research (CBR):

CBR is a rigorous, collaborative approach to research that equitably engages all partners in the research process by drawing on the unique strengths and expertise of each (1) and working with community members to identify the issues to study (2).”Community-based research is fundamentally driven by relationships” (3) aligning this methodology with the essence of an Indigenous research paradigm.

Indigenous knowledge:

Leroy Little Bear says that “in the Indigenous world, knowledge is relationships” (4). These relationships are “... predicated on the fact that all Indigenous tribes - their philosophies, cultural ways of life, customs, language, all aspects of their cultural being in one way or another - are ultimately tied to the relationships that they have established and applied during their history with regard to certain places and to the earth as a whole” (5). Our focus on land-based approaches to wellness and the central role of HIV Olders centre Indigenous knowledge in this study.

Decolonizing methodologies:

Decolonizing methodologies focus on moving theory into action and is a common priority with Indigenous research agendas because of their support for new and transformative research (6). We engage with decolonizing methodologies in order to centre Indigenous knowledge in research, recognizing the inherent connection between land, spirit, and mind, and acknowledging the separations between these elements are related to the ‘colonial project’ (7).

Two-eyed seeing (8):

Two-eyed seeing refers to the ability to understand research “from one eye with the strengths of Indigenous ways of knowing, and from the other eye with the strengths of western ways of knowing, and to use both of these eyes together” (9). Two-eyed seeing allows us to mediate, but not resolve, the uncertainty and irreconcilable ways that Indigenous ways of knowing may relate or conflict with Western research methods. This is particularly important for respecting how diverse participants and researchers may differentially understand health, wellbeing and HIV-related priorities.

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Notes and References:

1. Mendenhall, T. J., & Doherty, W. J. (2007). Partners in diabetes: Action research in a primary care setting. Action Research, 5(4), 378-406.
2. McIntyre, A., Chatzopoulos, N., Politi, A., & Roz, J. (2007). Participatory action research: Collective reflections on gender, culture, and language. Teaching and Teacher Education, 23(5), 748-756.
3. Leeuw, S. D., Cameron, E. S., & Greenwood, M. L. (2012). Participatory and community‐based research, Indigenous geographies, and the spaces of friendship: A critical engagement. The Canadian Geographer/Le Géographe canadien, 56(2), 180-194. (p. 188)
4. Little Bear, Leroy. 2009. Naturalizing Indigenous Knowledge, Synthesis Paper. Saskatoon, SK; Calgary, AB: University of Saskatchewan, Aboriginal Education Research Centre and First Nations and Adult Higher Education Consortium.
5. Cajete, G. (2000).  Native Science: Natural Laws of Interdependence. Santa Fe, New Mexico: Clear Light Publishers (p.4)
6. Hammond, C., Gifford, W., Thomas, R., Rabaa, S., Thomas, O., & Domecq, M. C. (2018). Arts-based research methods with indigenous peoples: an international scoping review. AlterNative: An International Journal of Indigenous Peoples, 14(3), 260-276.
7. Sium A, Chandni D, Ritskes E. Towards the “tangible unknown”: Decolonization and the Indigenous future. Decolonization Indig Educ Soc. 2012;1(1):I-XIII. doi:10.1007/s10964-013-0081-8.
8. We wish to acknowledge that Two-Eyed Seeing, Etuaptmunk, is a concept introduced by Mi’kmaw Elder Albert Marshall in 2004 and would invite you to learn more at the Institute for Integrative Science & Health Website.
9. Hatcher, A., & Bartlett, C. (2010). Two-eyed seeing: Building cultural bridges for Aboriginal students. Canadian Teacher Magazine, 6(5), 14-17. (p. 16)